Taking part in the GENESIS study

GENESIS is collecting the views and experiences of outpatients, outpatient staff and people working in health data governance. To do this there are different research activities you can take part in.

A summary of the different research activities are below. A full explanation of what taking part involves can be found in the participant information sheets which can be downloaded from the links opposite:

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Questionnaires

Take part in a short online questionnaire about your experiences of using or completing RAQs to help us understand the different ways they are currently being used

Go to the patient and public questionnaire (approx 10-20 min) Go to the outpatient staff questionnaire (approx 15 min) Go to the Chief Clinical information officer (CCIO) questionnaire (approx 10 min)
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Interviews and focus group

Take part in an interview (patients and outpatient staff) or a focus group (people working in health data governance). These will help us understand what different people think should be included in RAQs. We will also explore your views on whether a common approach can be used across different clinical specialities.

Interviews and focus groups will be upto 1 hour long and will be held online at a time convenient to you.

Click here to email us and register your interest in taking part
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Delphi (Two-part) survey

Take part in a two-part survey to vote on what content that should be included in future RAQs.

More information about delphi surveys can be found here soon.

The delphi survey will start in early 2026. Once it opens a link to take part will be posted here.

Click here if you would like us to contact you when the delphi opens
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Reviewing RAQ content

We are looking to collect blank copies of RAQs to review the range of content currently included in different RAQs. RAQs will be kept confidential and only used by the GENESIS team.

RAQs can be submitted through the Healthcare staff questionnaire or by emailing us a copy.

Click here to email us a blank RAQ Go to the outpatient staff questionnaire