About the GENESIS Study

NHS staff are increasingly sending questionnaires to patients via the internet (e.g. on phones, tablets or home computers) in between their hospital appointments. These “remote assessment questionnaires” (RAQs) aim to help healthcare teams make decisions about patient care, and they may cover a wide range of different topics.

RAQs often include one or more “patient-reported outcome measures” (PROMs) which ask the patient about their health (e.g. symptoms, quality of life). However, RAQs may also include a range of other topics (e.g. patient’s unmet needs or preferences for care). Questions may be general and relevant to anyone living with a chronic illness, or specific to a certain disease.

The questions included in RAQs are often chosen by each outpatient service separately. We do not know how much difference there is between the RAQs used across the NHS. However, having a common approach might help the NHS provide more effective and fair care for patients.

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The GENESIS study aims to:

  1. Explore the different ways RAQs are being used to support outpatient care
  2. Explore if a standard (common) approach to RAQs would be helpful
  3. Explore what content should be included in RAQs to best support patient care

GENESIS will look to involve three different groups of people:

Outpatients and members of the public

Healthcare professionals working in outpatient care

People working in health informatics

Further information about GENESIS study, the research activities we are running and how to take part will be added to the website once the relevant research approvals have been granted.